postr/StutterApril 13, 2024

Brain tumor and life-long stutter

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Brain tumor and life-long stutter I've posted here earlier about this, but I'm posting this again just to make some of you who are adults and stutter without any obvious reason, think if you should have an MRI. I got diagnosed with a brain tumor in 2018. I went to have a brain MRI for a last thing that we could try to find out why I had tinnitus. After the MRI, doctors said that can't possibly be related to tinnitus (because of the location) which I agree, as they think it's completely unrelated. I developed tinnitus just 2 years before the diagnosis. The only really weird symptom I have all my life, is severe stuttering. I've struggled all my life as I cannot easily say certain words, and it has given me significant social anxiety through my life. I've had speech therapy but nothing has helped, yet doing speech practice helps me a bit for a while. They've been having MRIs of the tumor for 5 years now. It hasn't grown. It's located in the fourth ventricle of the cerebellum and they have diagnosed it a juvenile pilocytic astrocytoma, but without any tests so it's just the "best guess". I've had the opinions of two neurosurgeons, they say the tumor could be related to the stutter but removing it won't help (I didn't ask about it, I just think it would get worse). Also, they don't have an opinion if it should be removed or not, but I'm going to trust the first neurosurgeon who told me it's probably not worth it until it starts growing. But told it can be removed "pretty safely, but as it's located in the cerebellum there's not much room for error". What would you consider if you had to make the decision in my situation?

Themes

Causes & VariabilityEmotional ExperienceIdentity & DisabilityTherapy & Professional

Subthemes

Neurological & BrainAnxiety & Social JudgmentTrauma & PsychologicalIdentity & Self-PerceptionTherapy Experiences