commentr/StutterJanuary 7, 2023

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Someone doing the most right here. thank you for helping. Like, what if my brain can't "just slow down" what then. Stuttering may be incurable for many of us but it's not as though it's TERMINAL. the way people treat us and the way we beat ourselves up is the biggest stressor I have as an adult who has coped my whole life. It helped me to see this view because some people just can't keep doing it, they can't keep trying to change themselves for their own mental health. fluent people don't know what it's like to be on a stage all the time!! I don't think any fluent person or people who SLP worked for can comprehend non-treatment for stutterers. Non-treatment is the best medicine for me. you can be confident and still stutter and this is actually something you can work on that doesn't require you to be fluent. I live around my stutter. I use the phone I go to the store I work with a phone. when you realize people who laugh are childish and have no idea they won't get under your skin as much and it might take some of the pressure off. This is a long post but OP really you should know you aren't alone if nothing seems like it's working. not by a long shot. I'm not talking down to anyone or looking for a fight. in fact I'm not here to debate I'm here comforting someone who sounds like they are at their wit's end. My view is only one view but it's my experience. I will repeat many times that I'm happy for anyone who finds fluency by any means. that's just not my experience. I am bitter and over 30 but One of my only posts on here was seeking how many people live life without treatment after having no positive outcome from treatment. Because after so many bad experiences with SLPs and SLPs expecting their things to "just work" LOL it was the worst joke (for me and my situation, if speecheasy works for you kudos but I could not hold a thought long enough to finish two sentences) One day at about 15 years old I decided it wasn't working and quit. 2010-2012 I tried the speecheasy with a SLP because my family invested in it as a "SURPRISE!!!" and when it didn't work at all after a while!!! I was asked to produce a dishonest review for my SLP "so insurance companies pay for it" I could not know if my experience was similar to others so why should I lie like that? it made me feel better to see that others had no luck with it either. Family really fought so hard to help me that when I got to the top of the mountain and it was on me to enjoy the help it just didn't help me! All they did was find another way for me to let them down you know!! when I'm fine the way I am!!!! I live a non-treatment life as a stutterer because I can't do anything to stop other people from treating me however they are going to treat me. trying to be fluent was so much more stressful because I would be trying so hard and getting the same result when interacting with the public. people still get in my head sometimes and make me feel like I'm broken but I really can't put rhyme or reason on my stutter. If people are going to judge me anyway I need to live my life. This may have made me very sarcastic but I have to laugh things off to not cry: the world is mean! but when people treat you poorly it's their problem. the only thing that reliably reduces my stutter is being in an environment where I'm not worried about stuttering. I still stutter around trusted folks or regular co workers but it's not as severe because I really can "take a deep breath" I have to also say that I think SLPs who were put in charge of my childhood SLP were not trained that stuttering was any different than a lisp. Having well intention-ed female SLP interns, up to 5 a schoolyear come in and think they would be the one to get me to "just take a deep breath" in the 2weeks they were interning was so defeating to my spirit at a time I shouldn't have been worrying like that. If treatment doesn't work that DOES NOT indicate that you are BROKEN!!!!!!!! so many ways to treat differences just reinforce to the disabled that we are "broken" and need to be fixed. Have you seen [AutismAdvocacy.org](https://AutismAdvocacy.org)? this is one of their flyers ([https://autisticadvocacy.org/wp-content/uploads/2021/04/AutismSpeaksFlyer2021.pdf](https://autisticadvocacy.org/wp-content/uploads/2021/04/AutismSpeaksFlyer2021.pdf)) pointing out some facts about the Autism Speaks foundation which fundraisers to like.... find a cure I guess? a lot of people give money to help people but it builds on this idea that being autistic makes someone broken and in every case!! we know many people on the spectrum live full lives when they are included and get supportive care vs cure-alls. some parents give their kids sketchy supplements to cure their kids of basically being different. ([https://www.nbcnews.com/tech/internet/moms-go-undercover-fight-fake-autism-cures-private-facebook-groups-n1007871](https://www.nbcnews.com/tech/internet/moms-go-undercover-fight-fake-autism-cures-private-facebook-groups-n1007871)) ​ Being fluent is great and all but most stutterers can do most everything else in life just fine. Maybe I'm just venting here for you, I hate seeing people feeling the ways I have!! it's agony!! try to take it easier on yourself. something I do that reduces my stress is that in most situations before or just after I initially get stuck I have practiced stopping and saying one thing: "please bear with me I stutter" "sorry, I have a speech impediment...". the only thing I really deal with still is that people who hear me stutter the first time, esp on the phone, they laugh at the noise and then are mortified when I factually declare a disability. mortified at themselves. It still hurts but saying "Sorry uh I have a stutter... anyway!" and keep talking I don't feel as flapped!! I don't know if any of this helps but there isn't a lot of support for non-treatment. I want to make sure this point of view is represented here because I just ignore SLP tips at this point they simply don't work for everyone. (If you're a nice SLP that's fine! if treatment helped you it's fine! but hearing "try this treatment! try this therapist! read this book!!" when nothing is working it is so soul crushing!!! keep in mind that good people mean well and sometimes just telling them breaks the ice and gets me the understanding I need. sometimes! ​ please take care from two to another!! you are valid and that's no joke. you don't exist to be fixed you are a whole human being as you are. you have things to give the world that do not require fluency. this is a conscious change in the way you talk to yourself. you are different but you CAN speak! you can think! and it's your right to do both. you don't need permission from fluent folks or anyone. no even me if this isn't right for you forget me! but your post spoke to a past I used to live in. (no i'm not into studies yes I gave everything a try I'm all set thanks! )

Themes

Anticipation & AvoidanceCoping & AdvocacyIdentity & Disability

Subthemes

Avoidance & SubstitutionHiding & ConcealmentOverthinking & MonitoringMindset shiftSelf-Advocacy & BoundariesAuthenticity vs. Masking

Codes (3)

ordering_service_encountersocializing_one_on_oneperceived_judgment