commentr/StutterJune 26, 2025

Content

There is stuttering in the sense of what fluent speakers occasionally do, where they involuntarily stumble on a word that they're otherwise usually capable of saying. And then there's COFD (Childhood-onset Fluency disorder), which is what most folks on this reddit have. Both forms of stuttering have many similarities - for instance they often recur on the same words/vowels, they're aggravated by circumstances such as ones that evoke stress or fear, etc. But the critical difference is that a non-stutterer is almost always able to get the word out by simply focusing more of their attention on it and trying again. The defining characteristic of COFD that distinguishes it from fluency is the seemingly impossible ability to get around a block or repetition once it happens. Simply focusing on it more doesn't instantly remove the block. This is the part ordinary, non-stuttering folks don't get. Us stutterers sometimes describe this as akin to an invisible vise-grip around their throats, physically restricting them from getting the word out. The cause of this is as yet unknown and is speculated to lie in the underlying neurology and neurochemistry of a stutterer. Some of us have found varying degrees of success managing this through speech therapy, but most approaches generally have to do with either: - a) practicing techniques to minimize the duration of blocks, making it easier to get past one, or avoidance strategies to bypass a block entirely - the loose umbrella term for all of this used by the community "fluency shaping", or - b) acceptance strategies that aim to inoculate stutterers to the adverse effects of their stuttering, which work by building confidence and reducing subconscious disinhibitions against speech that many stutterers come to accumulate over their lives. Whichever strategy is adopted, the almost universal case with stutterers is that the blocks never quite go away. True cases of complete stutter remission in adults tend to be exceedingly rare. The reason there's so much bad information about stuttering online for folks with COFD is ultimately because a lot of it is either tailored for non-stutterers, or is coming from well-meaning non-stutterers who, because of their unfamiliarity with COFD, tend to draw from their own experiences of dealing with their version of stuttering, unaware that their experiences don't reflect that of folks with COFD.

Themes

Identity & DisabilityCauses & VariabilityCoping & Advocacy

Subthemes

Medicalization / NeurodiversityNeurological & BrainStress & Fight/FlightFluency TechniquesAcceptance & Pride